Lee Marten still remembers moving a cursor across a screen using nothing but a thought. The 48-year-old Vancouver Police Department sergeant, currently on leave, became the first Canadian ALS patient to receive a Neuralink brain implant — Neuralink is owned by controversial trillionaire Elon Musk.
But Marten sees the procedure as a chance to improve his quality of life and advance science in a way that could help others.
Marten is part of a clinical trial at Toronto Western Hospital and considers the device as a way to keep communicating with his family even as amyotrophic lateral sclerosis (ALS) — a progressive disease with no cure — takes away his ability to move, speak and eventually breathe on his own.
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While Marten is still recovering, the almost science-fiction procedure and the diagnosis that led to this trial highlight a far more ordinary problem: What happens to income the moment a life-changing diagnosis, like this, arrives?
Most Canadians assume some mix of employment insurance (EI), the Canada Pension Plan (CPP) and workplace benefits will catch them if illness forces them out of work. In reality, that support pays less, and arrives slower, than most people expect — and for a large share of Canadians, especially the self-employed, there’s a real gap between a paycheque and what any government program replaces.
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How fast does a paycheque actually stop?
For an employee, the first option is usually EI sickness benefits, which pays 55% of insurable earnings (for a maximum of $729 a week), for up to 26 weeks.
Based on these calculations, an employee earning $95,000 a year who stops working due to a critical illness would have their annual income fall to roughly $37,900 for the first six months, before tax, and after 26 weeks, no income at all.
The shortfall highlights how EI offers little more than a short bridge, not a long-term income plan.
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Is CPP disability the safety net Canadians think it is?
For Canadians whose illness or disability is expected to last longer than 26 weeks, the next option is the CPP disability benefit.
In 2026, the maximum monthly payment is $1,741.20, made up of a flat basic amount of $610.46 plus an additional amount tied to individual’s contribution history. On average, a Canadian on CPP disability benefit earns approximately $1,210 per month — a fraction of a mid-career income. What’s worse is that CPP disability doesn’t cover medication, medical devices or other health costs.
Thankfully, for those facing such a disability, Service Canada does have a faster track for processing these applications — usually within five business days for a terminal illness — a condition expected to result in death within six months — and within 30 calendar days for a “grave” condition, drawn from a list of rapidly progressive illnesses developed by Employment and Social Development Canada.
But timing the application matters: Back pay is available once a claim is approved, but only once Service Canada has a completed application on file.
Why a workplace pension or LTD plan changes the whole picture
Marten’s case points to why occupational coverage matters.
Police officers, firefighters and other public-safety workers often have access to occupational disability pensions or employer long-term disability (LTD) plans that many private-sector and self-employed Canadians don’t have at their disposal.
Group LTD plans commonly replace 60% to 70% of income, though the definition of disability and payout maximums vary by policy — and these details are worth confirming with your employer’s human resources department.
For self-employed Canadians and gig workers, there is often no employer plan to fall back on at all. According to the Canadian Life and Health Insurance Association (CLHIA), an industry association representing Canada’s life and health insurers, roughly one in three working Canadians will be unable to work due to a disability lasting 90 days or longer at least once before age 65. Without a personal disability insurance policy, that gap falls on savings, family or provincial disability support.
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What can the Disability Tax Credit actually offset?
Once approved for a severe and prolonged impairment, Canadians can also apply to the Canada Revenue Agency (CRA) for the Disability Tax Credit (DTC).
For 2026, the federal disability amount is $10,341, providing a federal tax reduction of up to $1,448, on top of any provincial credit. DTC approval is also the gateway to other supports, including the Registered Disability Savings Plan and the Canada Disability Benefit, a newer income-tested federal payment for working-age adults with disabilities. None of these programs replaces lost income on its own, but combined, they can meaningfully soften the financial impact of a serious diagnosis.
The decision that actually protects a household
The math is sobering: a program built for the short term (EI), a pension built for modest income replacement (CPP disability) and tax relief that reduces bills rather than replacing pay (the DTC) — but none of these were designed to work alone.
To make it through a life-altering diagnosis with finances intact, you need to map out how to tackle the potential situation before the crisis becomes a reality. That review takes an afternoon. Waiting until a diagnosis arrives to find out costs months.
Traditional insurance options aren't your only choice. Evaluating how different plans stack up can help ensure your family has the right level of protection. Online providers can help. For instance you can get a PolicyMe term life insurance policy with coverage up to $5 million with premiums starting at just $21 per month — making it easier for you to secure your family’s financial future. Just answer four questions, and PolicyMe will provide you with an instant, no-obligation quote valid up to 90 days. Most policies are approved without any medical tests, and you can opt for term lengths ranging from 10 to 30 years. Get a free, no-obligation quote today with PolicyMe.
What to do now
The first step is to check whether your job includes group long-term disability coverage — and how much of your income it actually replaces.
If you’re self-employed, get a personal disability insurance quote while you’re healthy — keep in mind that insurance premiums rise sharply after a diagnosis.
If a severe and prolonged disability is confirmed, apply for CPP disability right away — terminal and grave conditions are fast-tracked, but back pay depends on when Service Canada receives a completed application.
Finally, ask a doctor or nurse practitioner about applying for the Disability Tax Credit — approval can unlock the Registered Disability Savings Plan and the Canada Disability Benefit
Map your EI sickness runway (up to 26 weeks) against how long a CPP disability decision could take, and plan for the income gap in between.
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Romana King, Senior Editor at Money.ca, also writes for various North American publications and the RKHomeowner blog. Her book, House Poor No More, is an Amazon bestseller and five-time award winner, including the 2022 New York CPA Society's Excellence in Financial Journalism (EFJ) Book Award.
Managing Money • Jul 04
